Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

HDSA Research Fellowships 2025 Berman- Topper Family HD Career Development Fellowship Recipient

#LetsTalkAboutHD with Caitlan Jane O’Heeron

FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

LOUISIANA SUPPORT GROUPS

Support Groups are safe places for you to meet other people affected by HD. Join us in Baton Rouge on the second Monday of each month and virtually on the first Thursday.

Join HDSA on Rare Disease Day – February 28th!

On February 28th, lets show our strength—together. This year, we’re counting on you to help us raise $15,000 and unlock our matching gift challenge, doubling our impact to $30,000 in support of HDSA programs, research, and family services. We can’t do this without you! DONATE TODAY!